Category Archives: Acta Derm Venereol

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Non-bullous Lichen Planus Pemphigoides: A Case Report.

Acta Derm Venereol. 2020 May 19;:

Authors: Lamberts A, Diercks GFH, Pas HH, Horváth B

PMID: 32424432 [PubMed – as supplied by publisher]

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Epidermolysis Bullosa Pruriginosa Excoriée: A Deceptive Pruritic Variant in Two Female Patients.

Acta Derm Venereol. 2015 Jun 3;

Authors: Gostyńska KB, Jonkman MF

Abstract
is missing (Short communication).

PMID: 26039182 [PubMed – as supplied by publisher]

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Health-related quality of life in epidermolysis bullosa: Validation of the Dutch QOLEB questionnaire and assessment in the Dutch population.

Acta Derm Venereol. 2014 Jul;94(4):442-7

Authors: Yuen WY, Frew JW, Veerman K, van den Heuvel ER, Murrell DF, Jonkman MF

Abstract
Defining the health-related quality of life (HRQoL) in patients suffering from the heritable blistering disease epidermolysis bullosa (EB) is important in assessing the efficacy of new treatments. The quality of life in EB questionnaire (QOLEB) is an English 17-item EB-specific HRQoL measurement tool. The aim of this study was to develop a validated and reliable QOLEB in Dutch and assess the HRQoL in Dutch EB patients. The QOLEB was translated to Dutch according to protocol. Fifty-five adult patients across 4 EB subtypes participated. The QOLEB had excellant correlation with the Skindex-29 (ρs = 0.86), good correlation with the SF-36 physical score (ρs = -0.75), and moderate correlation with the SF-36 mental score (ρs = -0.43). The discriminative validity between the 4 different EB subtypes was significant (p = 0.002). The internal consistency was excellent (α = 0.905), and the test-retest reliability strong (ρs = 0.88). In conclusion, the Dutch QOLEB is a reliable and valid instrument for the assessment of the HRQoL in adult EB patients.

PMID: 24337132 [PubMed – indexed for MEDLINE]

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Dexamethasone pulse therapy for Stevens-Johnson syndrome/toxic epidermal necrolysis.
Acta Derm Venereol. 2007;87(2):144-8
Authors: Kardaun SH, Jonkman MF
Abstract
Mortality in Stevens-Johnson sy… Continue reading →

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Main problems experienced by children with epidermolysis bullosa: a qualitative study with semi-structured interviews.
Acta Derm Venereol. 2008;88(2):143-50
Authors: van Scheppingen C, Lettinga AT, Duipmans JC,… Continue reading →

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Skin problems of the stump in lower-limb amputees: 2. Influence on functioning in daily life.
Acta Derm Venereol. 2011 Mar;91(2):178-82
Authors: Meulenbelt HE, Geertzen JH, Jonkman MF, Dijkstra PU
Abstr… Continue reading →

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Skin problems of the stump in lower limb amputees: 1. A clinical study.
Acta Derm Venereol. 2011 Mar;91(2):173-7
Authors: Meulenbelt HE, Geertzen JH, Jonkman MF, Dijkstra PU
Abstract
Use of a pr… Continue reading →

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Enamel Defects in Carriers of a Novel LAMA3 Mutation Underlying Epidermolysis Bullosa.
Acta Derm Venereol. 2012 Mar 20;
Authors: Yuen WY, Pasmooij AM, Stellingsma C, Jonkman MF
Abstract
Abstrac… Continue reading →